Hipoacusia infantil: Comunicar malas noticias

Pilar Carro Fernández

doi:10.51445/sja.auditio.vol4.2015.0048

Authors

Pilar Carro Fernández Unidad de Hipoacusia Infantil. Hospital Universitario Central de Asturias. Oviedo, España

DOI:

https://doi.org/10.51445/sja.auditio.vol4.2015.0048

Keywords:

hearing impairment , childhood, parents

Abstract

In recent years, the implementation of newborn screening programs for hearing loss has marked a milestone in the field of audiology. Before, when early detection did not exist, the family had time to begin to suspect that their child's hearing was not normal and after the suspicion, the confirmation of the diagnosis of hearing loss was gestated. At present, audiological tests allow us to access the diagnosis without going through these previous stages and deafness usually erupts in an unexpected way. The communication to parents of the diagnosis of deafness in the child should be done with great care. If we are trained in communication strategies we can improve the effectiveness of the message we want to convey. You have to avoid feelings of guilt, show understanding and encourage the appearance of constructive attitudes to face the problem. Only when parents understand what deafness is, when they know its repercussions and accept the limitations, only then will they be able to deal with the problem appropriately.

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References

Andréu, Ll. (1996). ¿Qué sentimientos y emociones se dan en la familia de un niño sordo? (II). FIAPAS, 50, 45-47. 1. Andreu, L.l. y Eusebio, P. (1996). ¿Qué sentimientos y emociones se dan en la familia de un niño sordo? FIAPAS, 48, 47-49.

Borrell, F. y Prados, J.A. (1995). Comunicar malas noticias. Estrategias sencillas para situaciones complejas. Barcelona: Doyma

Borrell, F., Júdez, J. y Segovia, J.L., Sobrino, A. y Teresa, A. (2001). El deber de no abandonar al paciente. Med. Clin (Barc), 117,262-273. https://doi.org/10.1016/S0025-7753(01)72081-7

Bukman, R. Communication skills in palliative care: a practical guide. (2001). Neurol Clin, 19(4),989-1004. https://doi.org/10.1016/S0733-8619(05)70057-8

Bukman, R., Baile, W. y Korsch, B. (1988). A practical Guide to Communication Skills in Clinical Practice (CD-ROM or video set). Toronto, Medical Audio-Visual Communications Inc.

Deben, K., Janssens de Varebeke, S., Cox, T. y Van de Heyring, P. (2003). Epidemiology of hearing impairment at three Flemish Institutes for Deaf and Speech Defective children. Int. J Pediatr Otorhinolaryngol, 67,969-75. https://doi.org/10.1016/S0165-5876(03)00186-1

Díaz-Estébanez, E., Salvador, D., Serna, M.J., Vázquez, A., Ferrer, J.C. y Valmaseda, M. (1996). Las personas sordas y su realidad social. Un estudio descriptivo. Ministerio de Educación y Ciencia (M.E.C.). Madrid.

Fallowfield, L. y Jenkins, V. (2004). Communicating sad, bad, and difficult news in medicine. Lancet, 363,312-319. https://doi.org/10.1016/S0140-6736(03)15392-5

Harrison, M. y Roush, J. (1996). Age of suspicion, identification, and intervention for infants and young children with hearing loss: A national study. Ear Hear, 17,55-62. https://doi.org/10.1097/00003446-199602000-00007

Harrison, M. y Roush, J. (2002). Information for families with young deaf and hard of hearing children: reports from parents and pediatric audiologists. En: R. Seewald, J Gravels (Eds.). A Sound Foundation Through Early Amplification, Proceedings of the Second International Conference. United Kingdom: St. Edmundsbury Press; (pp-233-251).

Lina-Granade, G., Morlé, L., Alloisio, N., Edery, P., Plauchu, H, y Truy E,. (2001). Genetic deafness: the primery cause of neurosensorial hearing loss in children. Arch Pediatr, 8,308-12. https://doi.org/10.1016/S0929-693X(00)00201-3

Luterman, D. (1985). The denial mechanism. Ear Hear, 6(1),57-8. https://doi.org/10.1097/00003446-198501000-00015

Pendleton, D, y Hasler, J. (1983). Doctor-Patient Communication. Londres: Academic Press Inc.

Roter, D.L, y Hall, J.A. (1989). Studies of doctor-patient interaction. Annu Rev Public Health, 10:163-180. https://doi.org/10.1146/annurev.pu.10.050189.001115

Sjoblad, S., Harrison, M., Roush, J. y McWilliam, R.A. (2001). Parent's reactions and recommendations after diagnosis and hearing aid fitting. Am J Audiol, 10, 24-31. https://doi.org/10.1044/1059-0889(2001/004)

Stuart, A., Moretz, M. y Yang E.Y. (2000). An investigation of maternal stress after hearing neonatal hearing screening. Am J Audiol, 9,135-41. https://doi.org/10.1044/1059-0889(2000/016)

Suchmann, A.L., Markakis, K,, Beckmann, H,B. y Frankl, R. (1997). A model of empathic communication in medical interview. JAMA, 277:678-82. https://doi.org/10.1001/jama.1997.03540320082047

Tizón, J. (1988). Componentes psicológicos de la práctica Médica. Barcelona: Doyma.

Yoshinaga-Itano, C.H., Sedey, A.L., Coulter, D.K. y Mehl, A.L. (1989). Language of early-and later- identified children with hearing loss. Pediatrics, 102,1161-71. https://doi.org/10.1542/peds.102.5.1161

Yoshinaga-Itano, C.H. (2002). Early intervention of pediatric hearing loss: implications for speech, language and socio-emocional development. 2th Congress of Pediatric audiology. Copenhaguen.